As a CML patient since 2001, Jan co-founded the patient advocacy organisations LeukaNET, European Cancer Patient Coalition, CML Advocates Network, Acute Leukemia Advocates Network and Workgroup of European Cancer Patient Advocacy Networks (WECAN).
He was Director of the European Patients’ Academy (EUPATI) and manages the German EUPATI platform. Jan represents patient perspectives in committees e.g. in the EU Cancer Mission Assembly, European Cancer Organisation, EHA, EuroBloodNET, ISPOR, iCMLf, German National Decade Against Cancer and the Ethics Committee of the Bavarian Chamber of Physicians. He is CEO of Patvocates, a think tank, consultancy and social enterprise on patient advocacy, health policy and patient engagement in research. He is work package leader in the IMI big data projects HARMONY and HARMONY-PLUS.